I'm tired and afraid and I'm sick to death of being both.
I'm so bloody bone weary. I'm so angry and impotent. How can there be no answers, yet? You know, they've told me that it is so rare for two sisters to have PTC that the docs involved are thinking of publishing on it?
Woo woo.
In the meantime, they hurt. I hate words, now. Pressure, headache, etc.
And then, almost worst of all, I hate that part of me that cringes away from it, that just wants to get some sleep, that just wants one day - just one day - where everyone is ok and I'm not needed to save anyone.
I'm an awful person, I know. And I'm tired.